Updated: Mar 27, 2020

Hydrosalpinx discovery and the wait continues

This week has been really hard. We had our first consultancy appointment on Tuesday with the IVF clinic ready to start the process. Except it was never going to be that easy was it?

We were so excited, filled in our forms, got there early, got weighed, etc. Consultant calls us in, goes through the forms, discusses where we are in the process and then discovers some notes on the system from a recent MRI scan. Turns out they have now discovered a hydrosalpinx- wonderful.

A hydrosalpinx is a fluid filled Fallopian tube causing it to swell and become distended. I knew my tubes were blocked already from the damage caused by endometriosis but I had never heard of this before. My understanding until this point was that I had blocked tubes but IVF can of course bypass them and that’s the whole point. The worst part of the news is that IVF patients with untreated hydrosalpinx have a 50% less chance of it working. The fluid in a hydrosalpinx can be toxic to embryos.

Furthermore, the consultant thought he would perform a scan to see if he could find it to confirm the MRI diagnosis but failed to see it. What he did confirm was that my left ovary is stuck to the back of my uterus and so in IVF this would make egg extraction extremely difficult and they may only have my right ovary to work with, therefore reducing the amount of eggs they could extract.

So we are somewhat back to square one. I am being referred for surgery with gynaecology so they can removed the affected tube and while they’re in there see about moving my left ovary into a more accessible position. This could take 3-5 months.

Our consultant did mention that each time I have surgery it also reduces the chances of IVF because the more scarring and affected areas I have the less habitable environment my embryos have to call home for 9 months. This has got me worried and moreover thinking super negative thoughts like: What’s the point in it all anyway? And Well it’s obviously not going to happen so let’s not bother. It’s all my fault, I’m the one holding up this process for us.

I have no wise words this week. I just feel sad for my body, sad that more months will go by that I can’t give Tom a child. Sad that we’ll continue on this path for some time and sad that there is further delay to us actually trying something with any sort of % chance of working.

Such a cliche to talk about a rollercoaster of emotions but this week has been one of extreme highs and extreme lows.

Huge thanks to some ladies on Instagram who have offered some insight into the diagnosis and some reassuring words. You have to cry, feel angry, shout and scream but get back on track. So looking forward to a weekend of relaxing and crafts to take my mind of it and re-energise us for the next steps.

Here’s a useful website I found about Hydrosalpinx and IVF.

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